Hi all people often ask me what it feels like to live with these illnesses to be honest theres no way you could describe it it just feels like you have ran a marathon and never reached the finish point and a hangover at the same time. I hate it when people say to me 'aw poor you' etc i don't want any sympathy i just want some understanding and would be nice not to feel like I'm lying or degraded some of us are worse then others were not all the same and were not the same everyday we varie from day to day depending on activities we did the day before or through out the day here i list some of the common symptoms :-
Overwhelming and persistent fatigue or tiredness, especially after doing things that didn’t used to make you feel exhausted. You may notice the fatigue straight away or it may take a day or two to kick in and is not relieved by rest. This delayed reaction is a distinctive feature of M.E. which can help doctors to make a diagnosis.
Feeling generally unwell or malaise which is similar to feeling like you have the flu. A sore throat with or without swollen glands.
Pain is common and can be felt as aching in the muscles and joints, pins and needles, muscle twitching and headaches or migraine.
Sleep difficulties such as needing to sleep excessively or not being able to sleep, unrefreshed sleep, waking in the early hours, light, dreamy, restless sleep and sleep reversal (for example, sleeping from 4am till midday).
Problems with thinking such as concentration difficulties, memory problems, difficulty finding the right words and problems organising thoughts.
Problems with the digestive system such as nausea and loss of appetite, indigestion, excessive wind, bloating, stomach cramps and alternating diarrhoea and constipation.
Problems with the nervous system including poor temperature control, sweating, dizziness and difficulties with balance and vertigo.
Increased sensitivity to alcohol, medication, some foods, bright lights, noise and odours.
these are just some of the symptoms we have to live with on an everyday basis please take time to understand these illnesses before asking questions and think your self lucky when all you have is a cold etc yes we could be worse but its still not nice to live with on an everyday basis thanks for taking time to read this blog it really means alot :) xXxXxXxXxXxXx
